Who we are

The SLC1A4 community was started by parents of children affected by SLC14 syndrome in an effort to support ongoing research into this debilitating disorder.

Our mission is to improve the lives of children and families who are affected by SLC14 syndrome. The community focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.

The community was founded by parents of children with SLC1A4 Syndrome with the intent of sharing information about the syndrome with other families that have been affected. Our Society has encouraged its members to meet and share common experiences to benefit the individual with the syndrome and their family. 

Our Society is a support organization that works diligently to spread awareness and provide valuable information, education, and support for families, educators, and medical professionals. 

Our Mission

Our mission is to improve the lives of children and families affected by SLC1A4 syndrome. We focus on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure.

We’re also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the get the best medical treatment.

  • We aim to accomplish our mission by:
  • Spread awareness among undiagnosed families
  • Financing and encouraging meaningful research
  • Provide valuable information for the medical professional.
  • Provide a place where families can submit information on their children and experiences